Well, I completely quit taking my humira. I just could't wrap my head around the idea that a medicine that was making me sooo sick and was likely to cause cancer was "good for me." That just seems crazy. So, I went back to my old standby; 9mg of entocort and 6 Asacol per day (with out my doctors concent, of course) and started thinking going back on those was a bad idea. I felt extra nauseous and extra tired so it makes me feel less like eating which is not good for the less than 90 pounds of a person that I am. I also saw online that if you get a sore throat with the Asacol to call your doctor imediately... needless to say, I quit taking those meds as well.
I'm a member of the CCFA comunity and saw how there are all these other medications (plus some that I've read about elsewhere) that the doctor could have given me first. There was one person who stated that once they were diagnosed, the doctor put them straight on humira; didn't try anything first. That got me awondering... maybe doctors treat patients as guinea pigs, maybe they really are in cahoots with the drug companies and get a kick back who knows!
But why not just try something "safer" first. It's not the money for me. I'm not worried about being able to pay or what the medications cost b/c I'm still on my parents insurance (which is an excellent insurance by the way) and our drug plan makes generic's $5/ rx and I name brand/ non generic what ever $20/rx where the humira is only $5 b/c of some special? (the word will come to me later) through the manufacturer.
I just want something that isn't likely to kill me and will make me actually feel better... not worse!
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I just found out I have Crohns too... I'm on Entocort (have been since June) Have to go back to GI in Sept. He wants me to take Humira...I don't want to! I did some food sensitivity testing and I'm trying to figure out what is bothering my stomach with diet. I wish you luck!
ReplyDeleteAmy,
ReplyDeleteI would say DON'T DO IT! I've done a lot of research lately (even some when I was told I had crohn's in highschool but no one would help me) and there are a great deal of medications out there. CCFA.org is a great place to see a what different medications are and how they work. I may try humeria again a long ways down the road, but I feel it's a last medication for people where nothing else works and can't tolerate remicade.
Also, from what I've been reading and my own experience and that of my grandmother's cousin's wife (wow. lol), when most people are diagnosed they are put on a steroid in the begining in conjunction with a 5-ASA or something of the like where that would maintain the symptoms while the steroid would reduce the inflamation. Check with him on it and good luck. We need all of it we can get.
~Stephanie